LIFE TAKES FIRST-HAND EXPERIENCE
Your experience with spinal muscular atrophy (SMA) is singular and unique. But there’s a reason this community is so tight-knit—you value the experience of others, and you learn from each other. That learning continues here in conversations about muscle, workarounds, and the community’s hopes for the future.
VIDEOS
RESOURCES
Life Takes Muscle Brochure
Get all the core information from Life Takes Muscle—save it to your phone, send it to a friend, or print it out to share with a loved one.
Striving for Muscle Strength
Ask three people to think about the role of muscle in their lives, you get three different perspectives. But all agree—muscle is so, so important.
Workarounds
Adaptations, hacks, workarounds. It’s all a way of expressing the same idea—those living with SMA have to get creative in how they manage fatigue.
Gaining Independence
From when the first SMA therapy was approved in 2016 to today, expectations have changed. And one thing for sure is that they’ll continue to evolve.
Supporting Independence Takes Strength
Even at 3 years old, independence matters. Muscle plays a pivotal role in making it possible for children growing up with SMA.
PT Sessions
Physical therapist Ralph Rodriguez-Torres discusses progressive muscle weakness in SMA, supporting movement with PT, and the potential for new muscle-targeted approaches to treatment.
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