TAKE IT TO
YOUR CARE
TEAM
Living with SMA and advocating for progress
Here’s how to track your progress, set strength goals, and make muscle part of your care discussions.
IT’S TIME TO TALK MUSCLE
SMA care has made great strides, and today’s treatments are changing the story in profound ways. But you deserve the chance to want more. For children and adults living with SMA, we haven’t reached the finish line yet.
There’s a new way to talk about SMA, and it puts the focus on muscle. Not as a supporting detail, but as a vital part of strength, motor function, and independence—now, and in the future. Muscle health belongs in your care plan and in conversations about your life goals. We’re here to help make those conversations clearer, stronger, and more informed.
PUT STRENGTH ON THE AGENDA
You and your caregivers know how to advocate best, and your care team is in your corner. The more you can clearly share what’s changing, what’s being lost, and your interest in including muscle health in your treatment plan, the better they can support you and your strength goals.
Gearing up for your next appointment? Download the complete Self-Advocacy Guide and set yourself up for success.
Living with SMA and advocating for progress
